Resources

Are we missing a vital resource? Want to share your young adult cancer blog with the YACC community? Let us know at dfishervance@yacancerconnection.org

YA Focus :: Young Adult Cancer Patient Advocacy Organizations (besides us)
Stupid Cancer
Offers programs and services, such as its annual conferences, to young adults with cancer

Ulman Cancer Fund for Young Adults
Raising awareness and providing resources such as its Maryland/DC based patient navigation program for young adults with cancer

Critical Mass
An alliance of organizations dedicated to young adults affected by cancer

CancerFightClub
(*In person services are Canada based)
Provides AYA’s and their caregivers with resources and support services as well as a blog/messaging forum to connect with others

Young Adult Cancer Canada (*In person services are Canada based)
Offers young adults (ages 18-39) affected by cancer conferences, an online community, and webinars

AYA (*Canada based)
Lists resources available to Canadian young adults (15-39) affected by cancer and their families

SeventyK
Educating patients, caregivers, and healthcare providers about the unique needs of the AYA cancer patient

Society for Adolescent and Young Adult Oncology
Advancing AYA cancer care through research, education, and interdisciplinary collaboration with health professionals

Shine (*UK based)
Provides information, peer support, and events for young adults with cancer experience

Trekstock (*UK based)
Provides resources and peer support for young adults (18-39) in the UK with cancer experience

CanTeen (*Australia based)
Provides resources and peer support for adolescents and young adults (12-24) in Australia with cancer experience and their caregivers

Pink Pearl (*Canada based)
Provides support and an opportunity for young women with cancer to connect via “ask the expert” sessions, retreats, and packages for those newly diagnosed

Young Survival Coalition
Provides support and education to young adults with breast cancer

Bright Pink
Focuses on prevention and early detection of breast cancer in young women through educational workshops while providing peer-peer support for high risk young women

Rethink Breast Cancer
Educates and advocates for the unique needs of young women affected by breast cancer

Tigerlily Foundation
Provides peer support, education, and financial/meal assistance to young women with breast cancer

Sharsheret
Supports young Jewish women during and after breast cancer by providing peer support and educational resources

5Under40
Provides support and lessons learned from five women diagnosed with breast cancer under 40

Team Shan
Educates young women about their breast cancer risk and offers breast health education

Be Loud Sophie Foundation (*University of North Carolina hospitals based)
Developing resources for adolescents and young adults with cancer experience at University of North Carolina hospitals

Vital Options
Created National Young Adult Cancer Awareness Week

13thirty Cancer Connect (Rochester and Buffalo, NY based)
Provides resources and support groups for 13-30 year olds with cancer experience.

15-40 Connection
Encourages early cancer detection by providing screening guidelines for common AYA cancers as well as a list of personal accounts of young adults affected by cancer

Sometimes it’s Cancer
Promotes early cancer detection by providing lists of common AYA cancers and symptoms

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Time for a break! :: Retreats
First Descents
Free adventure trips for young adults (under 40) affected by cancer

Athletes for Cancer
Free adventure trips for young adults affected by cancer

Mary’s Place By the Sea (*For those near Philadelphia)
A free healing beach retreat for women affected by cancer

Send It Foundation
Provides outdoor adventures for young adult cancer fighters (20-40)

Camp Mak-A-Dream
Offers free, Montana based retreats for young adults (18-40), teens, kids, women with cancer, and siblings of someone with cancer

Epic Experience (*Region specific trips but tries to accommodate all applicants)
Provides a free, Colorado based retreat for those who have been diagnosed with cancer at any age

On the Tip of the Toes Foundation (*For those in Canada)
Offers a free expedition for teens and young adults (18-29) undergoing or are no more than 5 years out of cancer treatment

The Cassie Hinds Shoes Foundation
Provides a weekend camp and social support for those who received a cancer diagnosis between ages 16-30 as well as financial support to attend other cancer camps and conferences

For Pete’s Sake (*Priority given to residents of MD, DE, PA, NJ, NY)
Provides trip grants for adults (24-55) who are in or within six months of finishing active cancer treatment

Nicolas Ritschel Foundation
Provides trip grants for young adults age 18-24 with a sarcoma diagnosis

Next Step (*In person services are New England based)
Provides free retreats and music therapy for teens and young adults with cancer, rare genetic diseases, and/or HIV

True North Treks
Offers wilderness treks with a focus on mindfulness for those diagnosed with cancer as a young adult (ages 18-40) who are post treatment

Camp Good Days and Special Times (*Keuka Lake, NY based)
Offers a free overnight camping retreat for young adults (age 18-39) who have received a cancer diagnosis in the past five years and a friend

Camp Simcha
Offers a free camp program to people between the ages of 6-20 in or out of treatment for cancer

Team Survivor
Provides exercise and support programs for women with a past or present cancer diagnosis

Survive and Thrive Cancer Programs
Offers adventure expeditions for adults and their caregivers affected by cancer. This is not a cost-free program but, there are limited stipends available

The Retreat Project
Runs a yoga retreat for low income cancer survivors

Teen Impact (*LA based)
Offers teen and young adult retreats and support groups

Camp Mokuleia (*Hawaii based)
Runs a camp for those with a cancer diagnosis between 14-21 years old (travel not provided unless you live on a surrounding Hawaiian island)

Cottage Dreams (*Canada based)
Donates a cottage get away to Canadians affected by cancer and their families and friends

A Fresh Chapter
Runs volunteer trips for adults, in or out of cancer treatment, and their caregivers (there is a program fee to participate)

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Anyone out there? :: Peer Support
Imerman Angels
Provides one-on-one support for people affected by cancer

Planet Cancer
Provides an online community for young adults in their 20’s and 30’s with cancer

CancerCare: Young Adults (*In person services are NYC based)
Offers free virtual and in person support groups and webinars for young adults affected by cancer and their caregivers

Cancer Hope Network
Matches those with cancer and their caregivers with trained volunteer cancer survivors who have gone through a similar cancer experience

Spero
An app that connects people with cancer with others who have a similar diagnosis

Instapeer
An app that connects people with cancer with others who are the same age and have a similar diagnosis

CaringBridge
Provides an online platform to keep family and friends apprised of your health care experiences

My Lifeline
Create a website to keep your family and friends updated, coordinate visits and assistance requests, and send out donation requests

Hope for Two…The Pregnant with Cancer Network
Provides resources and peer-peer support for women pregnant while dealing with cancer

myBCTeam
Provides a social network for people affected by breast cancer

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Money, Money, Money :: Financial Assistance
SAMFund
Provides financial assistance grants for 21-39 year olds post treatment or on maintenance therapy and financial education webinars

DAM Cancer
Provides financial assistance to young adults (age 18-35) who have cancer

Allyson Whitney Foundation
Provides grants to young adults (ages 15-36) currently undergoing or within 6 months of treatment for a rare cancer for medical bills, rent, utilities, car and health insurance premiums, IVF treatments, integrative therapies, travel expenses, medical hair pieces, etc.

Hope for Young Adults with Cancer
Provides resources and funds for young adults (18-40) in or up to 5 years out of cancer treatment for everyday expenses

The Nicki Leach Foundation
Provides financial grants to young adults (16-30) in cancer treatment

The Brenda Mehling Fund
Provides grants to young adults (18-40) undergrowing cancer treatment for everyday expenses

My Hometown Heroes
Provides college scholarships for young adults(age 17-39) with cancer experience

Cancer for College
Provides college scholarships for those affected by cancer

Cancer Survivors’ Fund
Offers $1,000 college scholarship for a student who has or had cancer

Stephen T. Marchello Foundation (*Only available in Colorado and Montana)
Offers post-secondary grants for high school seniors in Colorado and Montana

The Susan Fund (*Only available for Fairfield County, CT residents)
Provides educational grants to those who have been diagnosed with cancer

CollegeScholarships.org
List of scholarship opportunities for students affected by cancer and their siblings

FinAid.org
List of scholarship opportunities for students affected by cancer

Sy’s Fund
Provides funding for meaningful gifts and integrative therapies (acupuncture, massage therapy, etc.) for those ages 18-39 in treatment or with a chronic cancer-like condition

L.I.F.E.
Provides financial assistance for needs not covered by insurance (gas, hotel stays, hospital bills, medication costs, and co-pays) or bucket list goals to families caring for young adults (ages 18-30) who have been diagnosed with cancer

Cameron Siemers Foundation for Hope
Offers Life Grants to young adults (age 18-30) who have been diagnosed with a life threatening illness to fulfill a dream or project that will make a difference in your life and the lives of others

The Breathing Room Foundation (*Services available for those in Philadelphia area)
Provides financial help for medical needs and utility and/or grocery bills to families affected by cancer in the Philadelphia, Delaware, Montgomery and Chester County area as well as volunteers to help with cleaning and preparing a meal. Also offers several holiday comfort and support events.

CancerCare
Provides limited financial assistance for transportation, home care, and child care for women and children with all cancer diagnoses and men with certain diagnoses and geographical locations

CancerCare Co-Payment Assistance Foundation
Helps make cancer co-payments more affordable for those currently receiving treatment for pancreatic, glioblastoma, and/or gastric cancers in the US

Patient Advocate Foundation Co-Pay Relief
Provides financial assistance to aid in the co-payments of cancer treatments for those insured with certain types of cancer/chronic illness

NeedyMeds
Lists drugs that provide patient assistance programs to make treatment available to those who may not be able to afford it

Joe’s House
List of discounted accommodation near hospitals for those affected by cancer

Hope Lodge
Provides free temporary housing to those who need to receive treatment out of town

Angel Flight East (Serves the US East Coast but has contact with other regions)
Provides free flights on private planes to those with medical conditions traveling for treatment

Corporate Angel Network
Offers free empty seats on corporate jets for those with cancer traveling to an accredited treatment center for cancer treatment or a check up

Air Care Alliance
Helps connect you with a volunteer pilot who provides free air transport to medical treatment for those in financial need

LifeLine Pilots
Fascilitates free air transportation for financially distressed individuals with medical needs

Standbuy
Crowdfunding site dedicated to raising money for cancer expenses

GoFundMe
Crowdfunding site with a section dedicated to medical related expenses

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Mirror, Mirror on the Wall :: Body Image
Look Good, Feel Better
Boosting self-esteem of people going through cancer through instructive beauty workshops focused on managing cancer’s more transparent side effects

Nordstrom Breast Prosthesis Program
Aids in finding stylish post-mastectomy intimate apparel

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Oh Baby :: Fertility
Fertile Action
Educates those affected by cancer about fertility preservation options, offers peer support, and provides grants to reduce the cost of egg/embryo freezing, long term storage, egg donors, and surrogacy

Livestrong Fertility
Provides gender and age specific fertility information for those affected by cancer as well as an egg/embryo freezing discount program

MyOncoFertility
Educates patients and caregivers about cancer’s impact on fertility and provides self-advocacy tips

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Order in the Court: Legal Resources
Cancer Legal Resource Center
Provides information and education about cancer-related legal issues to the public through its toll-free national telephone assistance line and webinars

Patient Advocate Foundation
Provides legal counseling regarding access, to care job retention, and medical debt to those with cancer

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Freebies! :: Free Gifts/Services
3 Little Birds 4 Life
Grants wishes to young adults ages 18-40 with any type of cancer at any stage

Dream Foundation
Grants wishes to adults facing life threatening illness

The Angels Anonymous Connection (*Only available in Canada)
Grants wishes to adults facing terminal illness

Willow Foundation (*Only available in UK)
Grants special days for young adults (16-40) in treatment for a life-threatening illness

Wish Upon a Wedding
Grants weddings or vowel renewals for couples facing terminal illness or serious, life-changing circumstances

Craig Willinger Fund
Grants trips to see soccer matches to young adults (10-25) with a cancer diagnosis

Lisa’s Army
Gives comfort packages to people undergoing cancer treatment

Phil’s Friends
Sends care packages to people with cancer

Shay Sharpe’s Pink Wishes
Grants wishes to young women (age 40 and under) who have been diagnosed with terminal breast cancer

Cleaning for a Reason
Provides free house cleaning services once a month for four months for women undergoing cancer treatment

Good Wishes
Provides one free scarf or wrap to anyone experiencing hair thinning or loss due to illness and/or treatment

ConnieCaps
Free handcrafted hats for those in cancer treatment

Breast Friends Hat Project
Provides a free hat to anyone experience chemo related hair loss

Chemocessories
Provides free, personalized accessory sets to women undergoing cancer treatment

Healing Heels
Gives a free pair of shoes to women undergoing cancer treatment

The Lydia Project
Provides free (shipping not usually included unless there is financial strain) inspirational totes to women currently in cancer treatment

Thrive Through Cancer (*Seattle based)
Provides a list of resources and “hope totes” for young adults beginning cancer treatment

Fighting Fancy
Provides free tote bags filled with helpful items for young adults (15-39) recently diagnosed with breast cancer

The Dragonfly Foundation (*Only available in Cincinnati and Chicago)
Provides gifts and long term hospital stay care packages for those with cancer or a bone marrow transplant (age 0-30)

Nanny Angel Network (*Only available in Canada)
Provides free nanny service to those in cancer treatment or in the early stages of recovery with children under 12 years old

Alli’s Jourey (*Only available in Canada)
Provides comfort bags to young adults beginning cancer treatment and supports AYA cancer research

The Why? Foundation
Provides “fighter bags” with donated products to anyone with a cancer diagnosis on a first come first serve basis

Yoga4Cancer *(NYC based)
Offers free yoga classes to those in or out of cancer treatment

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Gifter’s Block :: Gifts Specially Designed with Cancer in Mind
Chemo Bites
Sells and sends healthy snack boxes to a patient’s doorstep (or hospital room)

Chemo Cozy
Sells stylish and comfortable fleeces with built in easy port access

Survival Organs
Sells infectiously cute organs affected by cancer hand sewn by a young adult survivor

Lacuna Loft
Sells gift packages geared towards young adults in the midst of treatment

Lindi Skin
Sells skincare items designed specifically for those in the midst of cancer treatment

AnaOno
A lingerie line exclusively for women who’ve had breast cancer

Treatmint Box
Sells a monthly box full of practical and inspirational gifts for people dealing with a cancer diagnosis

Red Thread
Sells post-mastectomy accessories

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Page Turner :: YA Cancer Blogs and Other Reading
Generation Why
Huffington Post’s young adult cancer related news and blog posts

New York Times “Life Interrupted” Column
Read Suleika Jaouad’s insightful personal account of her experience with cancer as a young adult

Journal of Adolescent and Young Adult Oncology
Read about the latest research in the newly burgeoning AYA oncology field –although not fully accessible to the public, some articles are free

NCCN Guidelines for Patients: Caring for Adolescents and Young Adults
Guidelines for young adults just diagnosed with and navigating cancer

The Children’s Oncology Group Long-Term Follow Up Guidelines for Childhood, Adolescent, and Young Adult Cancers

Focus Under Forty
Provides educational reports about the biology and psychosocial issues young adults with cancer face

Rodeo in Joliet
Glenn Rockowitz’s memoir detailing his experience with cancer as a young adult

Terminally Illin’
Kaylin Andres artistically depicts her experience with cancer as a 23 year old in this clever comic book

Everything Changes: The Insider’s Guide to Cancer in Your 20’s and 30’s
Kairol Rosenthal offers advice and stories from 25 young adults with cancer experiences

This Should Not Be Happening: Young Adults with Cancer
Dr. Anne Katz composed this guide for young adults with cancer based on interviews with 20 members of the young adult cancer community

Life, with Cancer: The Lauren Terrazzano Story
Pulitzer Prize winning writer Lauren Terrazzano’s advocacy and Newsday column detailing her experience with lung cancer under the age of 40 is recounted.

Cancer Knowledge Network
Provides resources and personal narratives focusing all aspects of living with cancer, such as music therapy, skin care, physical activity, working during chemo, and fertility preservation and publishes posts specifically on young adult cancer

Blog: HonestlyEmily
Emily Krauser documents her experience as a young adult post cancer

Blog: Just Three Words
One of our own YACCtors documents her experience being diagnosed with cancer at the age of 23

Blog: Elle es Forte
One of our own YACCtors documents her experience with Myelodysplastic Syndrome and a stem cell transplant

Blog: Texting with Cancer
Natalie Sun documents her breast cancer diagnosis at age 25 through an optimistic and pessimistic texting conversation

Blog: EmBen Kicks Cancer
Emily Bennett Taylor documents her lung cancer diagnosis at age 28 as well as her experience with surrogacy

Blog: Young Adult Cancer Survivorship by Steve Pake
Steve Pake documents the impact his testicular cancer diagnosis at age 33 has had on his life

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Lights, Camera, YACCtion :: YA Cancer Videos
Chasing Rainbows: Young Adults Living with Cancer

This documentary interviews six young adults about their experience with cancer

Life Interrupted Web Series
The NY Times Emmy award winning video series documenting Suleika Jaouad’s cancer experience

Valleys
Web Mini-Series exploring Amy and and her best friend Annie as they discuss their adventures down the Colorado River and young adult cancer experiences

I am a Visitor in Your World
Doccumentery exploring Becca Babcock’s experience with colon cancer and Familial Adenomatous Polyposis as a young adult

Get Empowered
A video series with advice for those who had cancer as a child

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In General :: General Cancer Resources
Cancer and Careers
Providing tools for people working during and post cancer

College Students Living with Chronic Illness
Tips for preparing for college following a cancer diagnosis

Chemo Between Classes
Advice for dealing with cancer during college from a young adult with cancer experience

Telling Kids About Cancer
Tips for talking to children about a cancer diagnosis

Cancer Support Community (*located in different cities throughout the country including Philly)
Offers free virtual and in person support and education programs for those affected by cancer

HopeLab
Develops social technologies to improve health and well-being such as their Re-Mission computer game where you can virtually blast cancer cells away

Twist Out Cancer
Enables anyone touched by cancer to connect and create through art projects and self-created challenges inspired by one’s cancer experience

Scott Hamilton Cares Foundation
Offers resources for cancer research, education, and survivorship

Malecare
Provides virtual support and resources for men dealing with cancer

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Mapquest :: Other Regional YA Cancer Meet Up Organizers
YACS of Atlanta
Organizes monthly YA cancer meet ups in Atlanta

YACS of Smith Center
Organizes monthly YA cancer meet ups and focus groups in DC

Midwest Young Adult Cancer Conference
Hosts an annual young adult cancer conference in Madison, WI

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YA Specialty :: Hospitals with an AYA Cancer Program
Dana Farber Cancer Institute (Boston, MA)
Tufts Medical Center (Boston, MA)
MD Anderson (Houston, TX)
Baylor Scott & White All Saints Medical Center (Fort Worth, TX)
Cook’s Children’s (Fort Worth, TX)
Ochsner Children’s Health Center (New Orleans, LA)
University of Southern California Norris Cancer Center (Los Angeles, CA)
UCLA Daltrey/Townshend (Los Angeles, CA)
Hyundai Cancer Institute at CHOC Children’s / UC Irvine Health (Orange, CA)
Stanford’s Children’s Health (Palo Alto, CA)
Cleveland Clinic Children’s (Cleveland, OH)
Nationwide Children’s (Columbus, OH)
Seattle Children’s Hospital (Seattle, WA)
Knight Cancer Institute Oregon Health & Science University (Portland, OR)
Children’s Hospital of Chicago & Lurie Cancer Center (Chicago, IL)
The University of Chicago Medicine (Chicago, IL)
Moffitt Cancer Center (Tampa, FL)
Blank Children’s Hospital (De Moines, IA)
Monroe Carell Jr.’s Children’s Hospital at Vanderbilt (Nashville, TN)
Memorial Sloan Kettering (NYC, NY)
Roswell Park Cancer Center (Buffalo, NY)
University Hospitals Rainbow Babies & Children’s Hospital (Richmond, VA)
Children’s Hospital of Pittsburgh (Pittsburgh, PA)
McGill University (Canada)

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Please Specify: Disease-Specific Resources
Hereditary Colon Cancer Takes Guts
Provides educational resources and support to those dealing with hereditary colon cancer syndromes (F.A.P., MYH-Associated Polyposis, and Lynch, Cowden, Hereditary Mixed Polyposis, Juvenile Polyposis, Muir Torre, Peutz-Jeghers, and Turcot Syndromes)

OneVoice
Provides super-charged, rare disease specific online communities for all stakeholders (patients, caregivers, advocates, pharma, healthcare professionals) in a given rare disease

Testicular Cancer Society
Provides resources and support to young men affected by testicular cancer

Basser Center for BRCA
Provides education and support for individuals and families with BRCA1 and BRCA2 mutations

Mesothelioma Center
Provides helpful services and free resources to those affected by mesothelioma and their families

Mesothelioma Guide
Provides a free guide and list of support groups to those affected by mesothelioma

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